No. of Cases Seen in a Year
- Total Referrals: 200
- Unilateral cleft lip and palate: 60
- Bilateral cleft lip and palate: 44
- Cleft palate only: 100
- Pierre Robin Sequence: 13
- With anomalies present: 50
Treatment Funded by State for National Residents
- Surgery costs: All
- Speech and Language Therapy costs: All
- Orthodontic costs: All
Primary surgical protocol
Cleft Lip Repair:
- Timing: 6-12 months
- Type of operation: One-stage cleft lip, hard and soft palate repair
Bilateral Cleft Lip Repair:
- Timing: 6-12 months
- Type of operation: One-stage cleft lip, hard and soft palate repair
Cleft Palate Repair:
- Timing: 6-12 months
- Type of operation: One-stage cleft lip, hard and soft palate repair
Record collection protocol
Are records routinely collected at specific ages? Yes
Does this conform to WHO recommendations for different cleft types? Yes
Research
Want to particpate in research? yes
Participation in inter-centre studies?
Current Research
| Type(s) of software used: | Word, excel, other |
| Participation in inter-centre studies: | Yes |
| Details of studies: | Prof. M. Hortis-Dzierzbicka: Eurocleft and Eurocran intercenter studies |
| Participation in other collaborations (projects): | Yes |
| Details of projects: | Prof. M. Hortis-Dzierzbicka : contributor to Eurocran…Speech Project, CLISPI Project, member of Task Force 5 Speech Assessment…for Int Congress in , 2013 |
| Published research papers: | Yes |
| Details of publications: | multiple |
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
Member details: Wlodzimierz Piwowar, Zbigniew Surowiec - surgery - Cohort studies, clinical trials
Elzbieta Radkowska - Speech therapy - Like above
Dorota Cudzilo, Jolanta Kostrzewa, Malgorzata Palczynska - orthodontics - Like above
Maria Hortis-Dzierzbicka - ENTphoniatrics - Cohort studies, clinical trials, Intercenter comparisons
Non-clinical and laboratory research
Non-clinical and laboratory team members who are or would like to be involved in clinical research:
Member details: Ewa Obersztyn - genetics
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes