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CHRISTMAS APPEAL 2015 In the last newsletter we highlighted the network of Bulgarian cleft nurses—trained and funded by ECO—which is changing the face of early cleft care in Bulgaria. We also carried an article about the first ever meeting of European cleft nurses which we organized in Romania in October. At that meeting it was agreed that ECO must step up its training activities to ensure every baby born with a cleft in Europe receives the very best care.   Even using volunteer trainers, training is expensive— a two day programme for 40 participants can cost more than €3000 taking into account travel, accommodation, venue hire and interpreters.   Please support our training activities in 2016 by making a donation today! Our Mission Approximately one in seven hundred children throughout Europe are born with cleft lip and/or cleft lip and palate, yet it remains little understood. The condition is completely treatable, and with the right medical care and social support, children born with clefts can go on to achieve the same as any other child. Yet access to good treatment varies enormously throughout Europe, meaning that many children born with clefts are never given the opportunity to realise their full potential. newwebpics002 Children born with clefts deserve better and all European nations should recognise that they have an obligation to ensure these children have access to good quality care, with evidence-based treatment outcomes. Our Core beliefs are:
  1. equality of access to care
  2. multidisciplinary approach
  3. involvement of local health professionals
  4. user input in decisions around management of care
  5. promotion of family-to-family support
  6. support for collaborative research into the aetiology (i.e. causes) of clefts of the lip and palate and prevention thereof
We regret that we cannot accept donations by cheque because the banking system in the Netherlands is no longer able to process them!