No. of Cases Seen in a Year
- Total Referrals: 150
- Unilateral cleft lip and palate: 30
- Bilateral cleft lip and palate: 10
- Cleft palate only: 80
- Pierre Robin Sequence: 10
Treatment Funded by State for National Residents
- Surgery costs: All
- Speech and Language Therapy costs: All
- Orthodontic costs: All
Comment on the service provision:
But restricted local SLT depending on age and address - Speech & language therapy
Primary surgical protocol
Cleft Lip Repair:
- Timing: 3 months
- Type of operation: Lip, Nose, vomer to hard palate
Bilateral Cleft Lip Repair:
- Timing: 3 months
- Type of operation: Lip adhesion, Nose, vomer
Cleft Palate Repair:
- Timing: 7 - 9 months
Record collection protocol
Are records routinely collected at specific ages? Yes
Does this conform to WHO recommendations for different cleft types? Yes
Intercentre Collaboration Interested
Research
Want to particpate in research? yes
Participation in inter-centre studies?
Current Research
Type(s) of software used: | Access |
Participation in inter-centre studies: | Yes |
Details of studies: | Crane |
Participation in other collaborations (projects): | Yes |
Details of projects: | Various |
Published research papers: | Yes |
Details of publications: | Multiple |
Research grant funding received: | Yes |
Willing to share Powerpoint presentations: | Yes |
CLINICAL Research activities you would be happy to become involved in:
Randomised clinical trials?
Inter-centre comparison of outcome?
Prospective cohort studies?
DNA collection?
LABORATORY based research you would be happy to be involved in:
Laboratory genetics/genomics research
Animal models research
Clinical research activities interested in being involved in:
Randomised clinical trials: | Yes |
Inter-centre comparison of outcome: | Yes |
Prospective study: | Yes |
DNA collection: | Yes |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
Member details: All
Non-clinical and laboratory research
Non-clinical and laboratory team members who are or would like to be involved in clinical research:
Member details: P. Stanier - Genetics - Genetics
M. Birch - Physicist - MRI
EU Biobank
Stored CLP DNA samples available for use in future studies:
Number for CP: Precise numbers not known
Number for CLP: Precise numbers not known
Other CFA: Precise numbers not known
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes
National cleft lip and palate / craniofacial scientific organisation
Organisation details: CFSGBI
http:www.craniofacialsociety.org.uk
Useful websites or links
Useful websites or links: www.gosh.nhs.uk
www.meht.nhs.uk