No. of Cases Seen in a Year

  • Total Referrals: 75
  • Unilateral cleft lip and palate: 12
  • Bilateral cleft lip and palate: 13
  • Cleft palate only: 50
  • Pierre Robin Sequence: 1
  • With anomalies present: 1

Treatment Funded by State for National Residents

  • Surgery costs: All
  • Speech and Language Therapy costs: All
  • Orthodontic costs: Don't know

Comment on the service provision:

via health insurance

Primary surgical protocol


Cleft Lip Repair:

  • Timing: 3-6 month

Bilateral Cleft Lip Repair:

  • Timing: 3-6 month

Cleft Palate Repair:

  • Timing: 12 months

Record collection protocol


Are records routinely collected at specific ages? Yes

Does this conform to WHO recommendations for different cleft types? Yes

Research

Want to particpate in research? yes

Participation in inter-centre studies?

Current Research

Type(s) of software used: Microsoft office suite
Documentation software for the nationawide cleft documentation by the German Cleft Palate Craniofacial Association (GCPA)
Participation in inter-centre studies: Yes
Details of studies: Nationawide cleft documentation by the German Cleft Palate Craniofacial Association (GCPA)
Participation in other collaborations (projects): Yes
Details of projects: Local interdisciplinary projects with orthodontics and phoniatrists concerning automatic speech assessment on children with clefts (granted by the German Research Foundation)
Published research papers: Yes
Details of publications: available in Pubmed (authors: Neukam FW, Nkenke E, Stelzle F)
Research grant funding received: Yes
Details of funding: DFG (Deutsche Forschungsgemeinschaft)
ELAN (Erlanger Leistungsbezogene Anschubfinanzierung und Nachwuchsförderung)

Clinical research activities interested in being involved in:

Randomised clinical trials: Yes
Inter-centre comparison of outcome: Yes
Prospective study: Yes
DNA collection: Yes





Clinical research

Clinical team members who are or would like to be involved in clinical research:
Member details: Stelzle F - discipline: OMFS - research activity (clinical)
Iliopoulos C - discipline: OMFS - research activity (clinical)

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes
Animal models research: Yes