No. of Cases Seen in a Year
- Total Referrals: 75
- Unilateral cleft lip and palate: 12
- Bilateral cleft lip and palate: 13
- Cleft palate only: 50
- Pierre Robin Sequence: 1
- With anomalies present: 1
Treatment Funded by State for National Residents
- Surgery costs: All
- Speech and Language Therapy costs: All
- Orthodontic costs: Don't know
Comment on the service provision:
via health insurance
Primary surgical protocol
Cleft Lip Repair:
- Timing: 3-6 month
Bilateral Cleft Lip Repair:
- Timing: 3-6 month
Cleft Palate Repair:
- Timing: 12 months
Record collection protocol
Are records routinely collected at specific ages? Yes
Does this conform to WHO recommendations for different cleft types? Yes
Research
Want to particpate in research? yes
Participation in inter-centre studies?
Current Research
Type(s) of software used: | Microsoft office suite Documentation software for the nationawide cleft documentation by the German Cleft Palate Craniofacial Association (GCPA) |
Participation in inter-centre studies: | Yes |
Details of studies: | Nationawide cleft documentation by the German Cleft Palate Craniofacial Association (GCPA) |
Participation in other collaborations (projects): | Yes |
Details of projects: | Local interdisciplinary projects with orthodontics and phoniatrists concerning automatic speech assessment on children with clefts (granted by the German Research Foundation) |
Published research papers: | Yes |
Details of publications: | available in Pubmed (authors: Neukam FW, Nkenke E, Stelzle F) |
Research grant funding received: | Yes |
Details of funding: | DFG (Deutsche Forschungsgemeinschaft) ELAN (Erlanger Leistungsbezogene Anschubfinanzierung und Nachwuchsförderung) |
Clinical research activities interested in being involved in:
Randomised clinical trials: | Yes |
Inter-centre comparison of outcome: | Yes |
Prospective study: | Yes |
DNA collection: | Yes |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
Member details: Stelzle F - discipline: OMFS - research activity (clinical)
Iliopoulos C - discipline: OMFS - research activity (clinical)
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes
Animal models research: Yes