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No. of Cases Seen in a Year

• Total Referrals: 15
• Unilateral cleft lip and palate: 1
• Bilateral cleft lip and palate: 2
• Cleft palate only: 6
• Pierre Robin Sequence: 1

Treatment Funded by State for National Residents

• Surgery costs: All
• Speech and Language Therapy costs: All
• Orthodontic costs: All

Primary surgical protocol

Cleft Lip Repair:

• Timing: 3 months

Bilateral Cleft Lip Repair:

• Timing: 3 months

Cleft Palate Repair:

• Timing: 12 months

Record collection protocol

Are records routinely collected at specific ages? Yes

Does this conform to WHO recommendations for different cleft types? No

Birth-7-10-15-20 years

Research

Want to particpate in research? yes

Participation in inter-centre studies? yes

Current Research

CLINICAL Research activities you would be happy to become involved in:

Randomised clinical trials? Yes

Inter-centre comparison of outcome? Yes

Prospective cohort studies? Yes

DNA collection? Yes

Clinical research activities interested in being involved in:

Randomised clinical trials:	Yes
Inter-centre comparison of outcome:	Yes
Prospective study:	Yes
DNA collection:	Yes

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Clinical research

Clinical team members who are or would like to be involved in clinical research:
Member details: G La Scala - Ped Plast Surg - Swiss Nat'l Registry
I Leuchter - PhoniatricsENT -
G Antonarakis - Orthodontics -

Non-clinical and laboratory research

Non-clinical and laboratory team members who are or would like to be involved in clinical research:
Member details: ........................... - Genetics - ....................

EU Biobank

Stored CLP DNA samples available for use in future studies:
Number for CP: All our patients have a blood sample taken for possible genetic analysis that CANNOT however be performed without their written consent.

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes
Animal models research: Yes