No. of Cases Seen in a Year
- Total Referrals: 84
- Unilateral cleft lip and palate: 24
- Bilateral cleft lip and palate: 12
- Cleft palate only: 48
- Pierre Robin Sequence: 13
- With anomalies present: 17
Treatment Funded by State for National Residents
- Surgery costs: All
- Speech and Language Therapy costs: All
- Orthodontic costs: All
Comment on the service provision:
All services provided by NHS throughout life
Primary surgical protocol
Cleft Lip Repair:
- Timing: 3 months
Bilateral Cleft Lip Repair:
- Timing: 3 months
Cleft Palate Repair:
- Timing: 6 – 9 months
Record collection protocol
Are records routinely collected at specific ages? Yes
Does this conform to WHO recommendations for different cleft types? Yes
Birth, 5 years, 10 years (include types of records taken and include note about craniofacial society guidance)
Intercentre Collaboration Interested
Research
Want to particpate in research? yes
Participation in inter-centre studies?
Current Research
| Type(s) of software used: | Excel, Access, Word, SymNose |
| Participation in inter-centre studies: | Yes |
| Details of studies: | Tri-Centre: West Midlands, South WalesSouth West, Spires |
| Participation in other collaborations (projects): | Yes |
| Details of projects: | Cleft Care UK, TOPS Trial, Cleft Collective |
| Research grant funding received: | Yes |
| Details of funding: | Cleft Care UK, TOPS Trial |
| Willing to share Powerpoint presentations: |
CLINICAL Research activities you would be happy to become involved in:
Randomised clinical trials?
Inter-centre comparison of outcome?
Prospective cohort studies?
DNA collection?
LABORATORY based research you would be happy to be involved in:
Laboratory genetics/genomics research
Animal models research
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
Member details: Cleft Team - Various - Various
EU Biobank
Stored CLP DNA samples available for use in future studies:
Number for CP: We are unaware of any samples stored in Birmingham
Number for CLP: We are unaware of any samples stored in Birmingham
Other CFA: We are unaware of any samples stored in Birmingham
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes
National cleft lip and palate / craniofacial scientific organisation
Organisation details: Craniofacial Society of Great Britain and Ireland
www.cfsgbi.org