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No. of Cases Seen in a Year

• Total Referrals: 30
• Unilateral cleft lip and palate: 10
• Bilateral cleft lip and palate: 3
• Cleft palate only: 17
• Pierre Robin Sequence: 4

Treatment Funded by State for National Residents

• Surgery costs: All
• Speech and Language Therapy costs: Part
• Orthodontic costs: Part

Primary surgical protocol

Cleft Lip Repair:

• Timing: 4 months

Bilateral Cleft Lip Repair:

• Timing: 6 months

Presurgical Orthodontics Used? Yes

• Strapping: No
• Orthodontic Palate: No

Cleft Palate Repair:

• Stages: Two stage
• 1st Stage Timing: 6 months
• 1st Stage Type of operation: Velum
• 2nd Stage Timing: 12 months
• 2nd Stage Type of operation: Hard palate. Narrow cleft palate one stage at 6 months

Record collection protocol

Are records routinely collected at specific ages? Yes

Does this conform to WHO recommendations for different cleft types? Yes

Research

Want to particpate in research? yes

Participation in inter-centre studies?

Current Research

Clinical research activities interested in being involved in:

Randomised clinical trials:	Yes
Inter-centre comparison of outcome:	Yes
Prospective study:	Yes
DNA collection:	Yes

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Clinical research

Clinical team members who are or would like to be involved in clinical research:
Member details: CARMEN PRADO - SURGERY -

NAGORE SOLAETXE - SURGERY -

ESTÍBALIZ SOLORZANO - SURGERY -

EU Biobank

Stored CLP DNA samples available for use in future studies:
Number for CP: 100
Number for CLP: 80

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes
Animal models research: Yes