No. of Cases Seen in a Year
- Total Referrals: 15
- Unilateral cleft lip and palate: 1
- Bilateral cleft lip and palate: 2
- Cleft palate only: 6
- Pierre Robin Sequence: 1
Treatment Funded by State for National Residents
- Surgery costs: All
- Speech and Language Therapy costs: All
- Orthodontic costs: All
Primary surgical protocol
Cleft Lip Repair:
- Timing: 3 months
Bilateral Cleft Lip Repair:
- Timing: 3 months
Cleft Palate Repair:
- Timing: 12 months
Record collection protocol
Are records routinely collected at specific ages? Yes
Does this conform to WHO recommendations for different cleft types? No
Birth-7-10-15-20 years
Research
Want to particpate in research? yes
Participation in inter-centre studies? yes
Current Research
Type(s) of software used: | • Swiss National Cleft Registry • Prospective data collection for all centre patients • Role of mitochondria in cleft palate (In association with Hospital for Sick Children, Toronto, Canada) Proprietary, Cardiff Teleform, Excel-Access |
Participation in other collaborations (projects): | Yes |
Details of projects: | Swiss Cleft Network (Geneva – Bern) |
CLINICAL Research activities you would be happy to become involved in:
Randomised clinical trials? Yes
Inter-centre comparison of outcome? Yes
Prospective cohort studies? Yes
DNA collection? Yes
Clinical research activities interested in being involved in:
Randomised clinical trials: | Yes |
Inter-centre comparison of outcome: | Yes |
Prospective study: | Yes |
DNA collection: | Yes |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
Member details: G La Scala - Ped Plast Surg - Swiss Nat'l Registry
I Leuchter - PhoniatricsENT -
G Antonarakis - Orthodontics -
Non-clinical and laboratory research
Non-clinical and laboratory team members who are or would like to be involved in clinical research:
Member details: ........................... - Genetics - ....................
EU Biobank
Stored CLP DNA samples available for use in future studies:
Number for CP: All our patients have a blood sample taken for possible genetic analysis that CANNOT however be performed without their written consent.
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes
Animal models research: Yes