No. of Cases Seen in a Year

  • Total Referrals: 40
  • Unilateral cleft lip and palate: 10
  • Bilateral cleft lip and palate: 5
  • Cleft palate only: 16
  • Pierre Robin Sequence: 4

Treatment Funded by State for National Residents

  • Surgery costs: All
  • Speech and Language Therapy costs: All
  • Orthodontic costs: All

Comment on the service provision:

We need researchers, secretaries, surgeons, nurses, matériel

Primary surgical protocol


Cleft Lip Repair:

  • Timing: 3 months

Bilateral Cleft Lip Repair:

  • Timing: 3 months

Cleft Palate Repair:

  • Timing: 9 months

Record collection protocol


Are records routinely collected at specific ages? Yes

Does this conform to WHO recommendations for different cleft types? No

What record taking protocol is used: clinical, photos, casts, fibroscopie, logopédie

Research

Want to particpate in research? yes

Participation in inter-centre studies?

Current Research

Type(s) of software used: 1-final dental implantology
2-breast feeding of newborns
3-speechoutcome
Published research papers: Yes
Willing to share Powerpoint presentations: Yes

Clinical research activities interested in being involved in:

Randomised clinical trials: Yes
Inter-centre comparison of outcome: Yes
Prospective study: Yes
DNA collection: Yes




Clinical research

Clinical team members who are or would like to be involved in clinical research:
Member details: christian Paulus
Surgeon

EU Biobank

Stored CLP DNA samples available for use in future studies:
Number for CP: idon't have

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes
Animal models research: Yes