No. of Cases Seen in a Year
- Total Referrals: 45
- Unilateral cleft lip and palate: 15
- Bilateral cleft lip and palate: 15
- Cleft palate only: 15
Treatment Funded by State for National Residents
- Surgery costs: Part
- Speech and Language Therapy costs: Part
- Orthodontic costs: Part
Primary surgical protocol
Cleft Lip Repair:
- Timing: 4-5 months
- Type of operation: Mulliken, Delaire
Bilateral Cleft Lip Repair:
- Timing: 5-6 mon ths
- Type of operation: Mulliken, Millard
Cleft Palate Repair:
- Stages: Two stage
- 1st Stage Timing: 8 months
- 1st Stage Type of operation: Soft Palate
- 2nd Stage Timing: 12-18 months
- 2nd Stage Type of operation: Hard Palate
Record collection protocol
Are records routinely collected at specific ages? No
Does this conform to WHO recommendations for different cleft types? No
Cast and photographs at birth and during pre-primary surgery orthodontics, routine orthodontic records before maxillary advancement therapy by face-mask (at age 7-8), computerized tomography before secondary bone grafting, routine ortho. records before Le Fort 1 surgery if needed.
Research
Want to particpate in research? yes
Participation in inter-centre studies? no
Current Research
Type(s) of software used: | Any kind |
Participation in inter-centre studies: | Yes |
Details of studies: | Distraction Osteogenesis studies with NYU Genetic Studies with Private Genetics Center Various studies with other universities on Cleft. |
Participation in other collaborations (projects): | Yes |
Details of projects: | Genetic Studies with Private Genetics Center |
Published research papers: | Yes |
Details of publications: | The senior members of the team each has approximately 20 published papers. |
Willing to share Powerpoint presentations: | Yes |
Clinical research activities interested in being involved in:
Randomised clinical trials: | Yes |
Inter-centre comparison of outcome: | Yes |
Prospective study: | Yes |
DNA collection: | Yes |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
Member details: Ayşe Altuğ - Orthodontics - Associate Prof. Former Research fellow
(2000-2001) at NYU-IRPS, New York, USA
Ufuk Memikoğlu - Orthodontics - Professor
Okan Akçam - Orthodontist - Professor
Ayşegül Tüzüner - Oral and Maxillofacial Surgery - Associate Prof. Former Research Fellow QEII Health Sciences Centre Halifax, Canada
Aslı Şenol - Orthodontics - Doctorate Student
Non-clinical and laboratory research
Non-clinical and laboratory team members who are or would like to be involved in clinical research:
Member details: Ayşe Altuğ - Orthodontics - Associate Prof. Former Research fellow
(2000-2001) at NYU-IRPS, New York, USA
Ufuk Memikoğlu - Orthodontics - Professor
Okan Akçam - Orthodontist - Professor
Ayşegül Tüzüner - Oral and Maxillofacial Surgery - Associate Prof. Former Research Fellow QEII Health Sciences Centre Halifax, Canada
Aslı Şenol - Orthodontics - Doctorate Student
EU Biobank
Stored CLP DNA samples available for use in future studies:
Number for CP: We are also building up a genetic sample of various types of Cleft at the moment. We would be happy to get involved in such a DNA based study in the future.
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes