Early in 2015 ECO achieved its mission of developing a set of guidelines in early cleft care, agreed at a European level. The guideline has been endorsed by the Committee for European Standardisation (CEN) in Brussels and was approved by an overwhelming majority of voting CEN member bodies across Europe. This has been a long process, beginning in 2011 and along the way we have had input from Austria, Belgium, Bulgaria, Estonia, Finland, France, Germany, Lithuania, Spain, Romania and the UK. The Technical Report specifies recommendations for the care of babies born with cleft lip and/or cleft palate at time of diagnosis (ante- and/or postnatal) and the year following birth or diagnosis (whichever is later), including referral processes, establishment of feeding, parental support and care pathways. Recommendations on all aspects of surgery, including timing and the use of pre surgical orthopaedics is excluded. Contents 1. Introduction 2. Terms and definitions 3. Diagnosis and referrals 4. Immediate post natal care 5. Feeding 6. Monitoring the baby and preparation for surgery 7. Recommendations for involving and supporting parents 8. The longer term care pathway 9. Recommendations for the cleft unit team members and facility requirements 10. Recommendations for the organisation of the cleft service including clinical governance and audit 11. Information and education needs 12. Information production Annex A – Types of cleft lip and/or palate Annex B – Pierre Robin Sequence and treatment options Annex C – Bottles and teats used for assisted feeding of babies with clefts Annex iv Description of role of nurse specialising in cleft care Annex v Sample form used for feeding assessment of babies with clefts Annex vi Recommendations on treatment records Bibliography DOWNLOAD GUIDELINES