No. of Cases Seen in a Year

  • Total Referrals: 25
  • Unilateral (one sided) cleft lip only: 10
  • Bilateral (Two sided) cleft lip only: 3
  • Unilateral cleft lip and palate: 4
  • Bilateral cleft lip and palate: 1
  • Cleft palate only: 15
  • Pierre Robin Sequence: 3
  • With anomalies present: 6

Treatment Funded by State for National Residents

  • Surgery costs: All
  • Speech and Language Therapy costs: All
  • Orthodontic costs: All

Primary surgical protocol


Cleft Lip Repair:

  • Timing: 3-4 months

Bilateral Cleft Lip Repair:

  • Timing: 3-4 months

Cleft Palate Repair:

  • Timing: 6-12 months

Record collection protocol


Are records routinely collected at specific ages? Yes

Does this conform to WHO recommendations for different cleft types? Yes

Research

Want to particpate in research? yes

Participation in inter-centre studies?

Current Research

Type(s) of software used: Excel, Access, Word,…
Willing to share Powerpoint presentations: Yes

Clinical research activities interested in being involved in:

Randomised clinical trials: Yes
Inter-centre comparison of outcome: Yes
Prospective study: Yes
DNA collection: Yes





Clinical research

Clinical team members who are or would like to be involved in clinical research:
Member details: Hospital Miguel Servet. Zaragoza
Hospital Juan Canalejo. A Coruña
Hospital La Paz. Madrid
Hospital 12 Octubre Madrid
Hospital del Niño Jesús. Madrid
Hospital San Joan de Deu Barcelona
Hospital Virgen del Rocio Sevilla

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes