No. of Cases Seen in a Year

  • Total Referrals: 15
  • Unilateral (one sided) cleft lip only: 5
  • Bilateral (Two sided) cleft lip only: 1
  • Unilateral cleft lip and palate: 5
  • Bilateral cleft lip and palate: 1
  • Cleft palate only: 5
  • Pierre Robin Sequence: 1
  • With anomalies present: 1

Treatment Funded by State for National Residents

  • Surgery costs: All
  • Speech and Language Therapy costs: Part
  • Orthodontic costs: Part

Comment on the service provision:

Speech therapist is provided at school through the special aid program to development of language in compromised patients. Medical specialist on Rehabilitation is responsible to follow up the progress of language skills
Orthodontic treatment is provided in private practice and the cost is partially supported by the government.
Dental care is provided on public services for the definitive dentition until 16 years
Oral&Maxillofacial surgeon coordinates the treatment in dental aspects

Primary surgical protocol


Cleft Lip Repair:

  • Timing: 6 months
  • Type of operation: Millard II

Bilateral Cleft Lip Repair:

  • Timing: 6 months
  • Type of operation: Mulliken

Cleft Palate Repair:

  • Timing: 12-18 months
  • Type of operation: Von Langenbeck/ Furlow

Record collection protocol


Are records routinely collected at specific ages? Yes

Does this conform to WHO recommendations for different cleft types? No

Clinical reports and photography at hospital
Dental cast, Rx and photography at orthodontist cabinet (not available in hospital)
Speech follow up at school with the language terapist

Research

Want to particpate in research? yes

Participation in inter-centre studies?

Current Research

Type(s) of software used: Access
Willing to share Powerpoint presentations: Yes

Clinical research activities interested in being involved in:

Inter-centre comparison of outcome: Yes
Prospective study: Yes
DNA collection: Yes




Clinical research

Clinical team members who are or would like to be involved in clinical research:
Member details: Joaquin Garatea Crelgo (Maxillofacial Surgeon)
Paloma Rodriguez Garcia (ENT)
Aurelia Mena Mur (Rehabilitation)
Juan José Los Arcos (Orthodoncist)

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes