No. of Cases Seen in a Year

  • Total Referrals: 45

Treatment Funded by State for National Residents

  • Surgery costs: All
  • Speech and Language Therapy costs: All
  • Orthodontic costs: All

Primary surgical protocol


Cleft Lip Repair:

  • Timing: 3 month

Bilateral Cleft Lip Repair:

  • Timing: 3 month

Cleft Palate Repair:

  • Timing: 6 to 12 month

Record collection protocol


Are records routinely collected at specific ages? Yes

Does this conform to WHO recommendations for different cleft types? Yes

Research

Want to particpate in research? yes

Participation in inter-centre studies? yes

Current Research

Participation in inter-centre studies: Yes
Details of studies: TOPS, NIH founded
Participation in other collaborations (projects): Yes
Published research papers: Yes
Research grant funding received: Yes
Willing to share Powerpoint presentations: Yes

Clinical research activities interested in being involved in:

Randomised clinical trials: Yes
Inter-centre comparison of outcome: Yes
Prospective study: Yes
DNA collection: Yes





EU Biobank

Stored CLP DNA samples available for use in future studies:
Number for CP: No
Number for CLP: No
Other CFA: No

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes