No. of Cases Seen in a Year
- Total Referrals: 40
- Unilateral cleft lip and palate: 20
- Bilateral cleft lip and palate: 5
- Cleft palate only: 15
- Pierre Robin Sequence: 3
Treatment Funded by State for National Residents
- Surgery costs: All
- Speech and Language Therapy costs: Part
- Orthodontic costs: Part
Comment on the service provision:
Orthodontics and speech therapy are sometimes performed in private clinics.
Primary surgical protocol
Cleft Lip Repair:
- Timing: 6 months
- Type of operation: Millard
Bilateral Cleft Lip Repair:
- Timing: 6 monthd
- Type of operation: Millard
Cleft Palate Repair:
- Stages: Two stage
- 1st Stage Timing: 6-12 months
- 1st Stage Type of operation: Soft palate repair - Von Langenbeck
- 2nd Stage Timing: 3 years
- 2nd Stage Type of operation: Hard palate repair - Veau-Wardill-Kilner
Record collection protocol
Are records routinely collected at specific ages? Yes
Does this conform to WHO recommendations for different cleft types? No
At 3 years old - speech evaluation
At 5-6 years old – clinical evaluation if secondary procedures needed
At 14-15 years old – clinical evaluation if secondary procedures needed
Research
Want to particpate in research? yes
Participation in inter-centre studies?
Current Research
Type(s) of software used: | Access database since 2001 Photos Palatal molds for some children |
Participation in other collaborations (projects): | Yes |
Details of projects: | Smile Train 2008 – EBOPRAS (European Board of Plastic, Reconstructive and Aesthetic Surgery) accreditation for cleft lip and palate treatment |
Published research papers: | Yes |
Details of publications: | General principles in treating bilateral cleft lip, The Annals of Plastic Surgery and Reconstructive Microsurgery, 32004 Operative techniques for primary surgical treatment of unilateral cleft lip, The Annals of Plastic Surgery and Reconstructive Microsurgery, 32004 Therapeutic protocol in bilateral cleft lip, The Annals of Plastic Surgery and Reconstructive Microsurgery, 32005 Therapeutic protocol in unilateral cleft lip, The Annals of Plastic Surgery and Reconstructive Microsurgery, 32005 A treatment concept for the cleft palate, The Annals of Plastic Surgery and Reconstructive Microsurgery, 32005 An overview to congenital facial malformations, The Annals of Plastic Surgery and Reconstructive Microsurgery, 32006 Surgical alternatives in primary treatment of cleft lip and palate, The Annals of Plastic Surgery and Reconstructive Microsurgery, 32008 |
Research grant funding received: | Yes |
Willing to share Powerpoint presentations: | Yes |
Clinical research activities interested in being involved in:
Randomised clinical trials: | Yes |
Inter-centre comparison of outcome: | Yes |
Prospective study: | Yes |
DNA collection: | Yes |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
Member details: Prof. Dr. Dan Mircea Enescu - Plastic surgery - clinical trial
Dr. Simona Stoicescu - Plastic surgery - clinical trial
Dr. Raluca Alexandru - Plastic surgery - clinical trial
Dr. Dan Ionita - Plastic surgery - clinical trial
Dr. Raluca Bulea - Plastic surgery - clinical trial
EU Biobank
Stored CLP DNA samples available for use in future studies:
Number for CP: no
Number for CLP: no
Other CFA: no
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes