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No. of Cases Seen in a Year

• Total Referrals: 80
• Unilateral cleft lip and palate: 30
• Bilateral cleft lip and palate: 3
• Cleft palate only: 30
• Pierre Robin Sequence: 5

Treatment Funded by State for National Residents

• Surgery costs: All
• Speech and Language Therapy costs: All
• Orthodontic costs: All

Comment on the service provision:

NHS SERVICE

Primary surgical protocol

Cleft Lip Repair:

• Timing: 4 MONTHS

Bilateral Cleft Lip Repair:

• Timing: 4 MONTHS

Cleft Palate Repair:

• Timing: 9 MONTHS

Record collection protocol

Are records routinely collected at specific ages? Yes

Does this conform to WHO recommendations for different cleft types? Yes

Intercentre Collaboration Interested

Research

Want to particpate in research? yes

Participation in inter-centre studies? no

Current Research

Clinical research activities interested in being involved in:

Randomised clinical trials:	Yes
Inter-centre comparison of outcome:	Yes
Prospective study:	Yes
DNA collection:	Yes

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Clinical research

Clinical team members who are or would like to be involved in clinical research:
Member details: ALL

Non-clinical and laboratory research

Non-clinical and laboratory team members who are or would like to be involved in clinical research:
Member details: NA

EU Biobank

Stored CLP DNA samples available for use in future studies:
Number for CP: NK
LDREN OF THE 90S
ALSPAC
Number for CLP: NK
LDREN OF THE 90S
ALSPAC
Other CFA: NK
CHILDREN OF THE 90S
ALSPAC

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details: CFSGBI