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No. of Cases Seen in a Year

• Total Referrals: 110
• Unilateral cleft lip and palate: 20
• Bilateral cleft lip and palate: 7
• Cleft palate only: 60
• Pierre Robin Sequence: 5

Treatment Funded by State for National Residents

• Surgery costs: Part
• Speech and Language Therapy costs: Part
• Orthodontic costs: Part

Comment on the service provision:

patient fee 5 % of total cost

Primary surgical protocol

Cleft Lip Repair:

• Timing: 4 months

Bilateral Cleft Lip Repair:

• Timing: 4 months

Cleft Palate Repair:

• Stages: Two stage
• 1st Stage Timing: 4 months
• 1st Stage Type of operation: Hard palate for UCLP only
• 2nd Stage Timing: 9 months
• 2nd Stage Type of operation: Soft palate for UCLP only. Otherwise one stage hard and soft palate repair for all other types of cleft

Record collection protocol

Are records routinely collected at specific ages? Yes

Does this conform to WHO recommendations for different cleft types? Yes

Intercentre Collaboration Interested

Research

Want to particpate in research? yes

Participation in inter-centre studies?

Current Research

Clinical research activities interested in being involved in:

Randomised clinical trials:	Yes
Inter-centre comparison of outcome:	Yes
Prospective study:	Yes

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Clinical research

Clinical team members who are or would like to be involved in clinical research:
Member details: All team members

EU Biobank

Stored CLP DNA samples available for use in future studies:
Number for CP: no

National cleft lip and palate / craniofacial scientific organisation
Organisation details: no