No. of Cases Seen in a Year
- Total Referrals: 90
Treatment Funded by State for National Residents
- Surgery costs: All
- Speech and Language Therapy costs: All
- Orthodontic costs: Part
Primary surgical protocol
Cleft Lip Repair:
- Timing: Neonatal
Bilateral Cleft Lip Repair:
- Timing: Neonatal
Cleft Palate Repair:
- Timing: 10 months
Record collection protocol
Are records routinely collected at specific ages? Yes
Does this conform to WHO recommendations for different cleft types? Yes
Research
Want to particpate in research? no
Participation in inter-centre studies?
Current Research
| Type(s) of software used: | Two specific data bases are commonly in use in our team since over 20 year developed under Filemaker Pro |
| Participation in inter-centre studies: | Yes |
| Details of studies: | French network of cleft lip (we are leading this network in cooperation with the Dep Of Cl&p, Pr Vazquez Hop. Trousseau-Necker Paris on the behalf of French health ministery) prospective study on the consequences of the time for cleft lip repair onto the child-parents relationship. retrospective study on the self-affirmation of patients with cleft lip. |
| Participation in other collaborations (projects): | Yes |
| Details of projects: | epidemiology of cleft in France |
| Published research papers: | Yes |
| Details of publications: | go to medline please and look P. Pellerin+ cleft |
| Willing to share Powerpoint presentations: | Yes |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
Member details: all the team members
Non-clinical and laboratory research
Non-clinical and laboratory team members who are or would like to be involved in clinical research:
Member details: no one on a systematic way.
We use to ask help for specific requirement depending of a research.
our team is part of a big university center and any cooperation in any field is avalaible.
EU Biobank
Stored CLP DNA samples available for use in future studies:
Number for CP: we are already involved in a research about non syndromic hereditary cleft with the Pr VIKKULA team at the Brussel UCLA in Belgium
all the samples are in its dept. under his responsability
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes
National cleft lip and palate / craniofacial scientific organisation
Organisation details: The "Association Francophone des Fentes Faciales(A.F.F.F.)" is our scientific society with a bi annual congress, please contact Pr Pellerin Centre de référence des Malformations cranio maxillo faciales rares, C.H.U. de Lille 59037 Lille cedex France as the general Secretary, e-mail : malface@chru-lille.fr
On the behalf of the french Health Ministery a network of centers with the label of health care administration has been organized you may found detail following this link:http:www.fente-labio-palatine.frqui-sommes-nousreseau-national-fente
Useful websites or links
Useful websites or links: france : www.fente-labio-palatine.fr
Belgique : www.fente-labiale.org
Suisse : www.bouche-a-oreilles.org
Europe : European Cleft Organisation.
Etats Unis : Cleft Palate Foundation.
Etc. : http:en.wikipedia.orgwikiCleft_lip_and_palate_organisations