No. of Cases Seen in a Year
- Total Referrals: 100
- Unilateral cleft lip and palate: 35
- Bilateral cleft lip and palate: 5
- Cleft palate only: 30
- Pierre Robin Sequence: 30
- With anomalies present: 20
Treatment Funded by State for National Residents
- Surgery costs: Part
- Speech and Language Therapy costs: Part
- Orthodontic costs: Part
Primary surgical protocol
Cleft Lip Repair:
- Timing: Neonatal Period
- Type of operation: Labioplasty and Rhinoplasty
Bilateral Cleft Lip Repair:
- Timing: Neonatal Period
- Type of operation: Labioplasty and Rhinoplasty
Cleft Palate Repair:
- Timing: 3 months
- Type of operation: Staphylorraphy and hearing tubes
Record collection protocol
Are records routinely collected at specific ages? Yes
Does this conform to WHO recommendations for different cleft types? Yes
Intercentre Collaboration Interested
Research
Want to particpate in research? yes
Participation in inter-centre studies?
Current Research
| Type(s) of software used: | excel |
| Participation in inter-centre studies: | Yes |
| Participation in other collaborations (projects): | Yes |
| Details of projects: | With different European centers |
| Published research papers: | Yes |
| Details of publications: | Genetic papers |
| Willing to share Powerpoint presentations: | Yes |
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
EU Biobank
Stored CLP DNA samples available for use in future studies:
Number for CP: Stored with our centre geneticist
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes