No. of Cases Seen in a Year

  • Total Referrals: 30
  • Unilateral cleft lip and palate: 10
  • Bilateral cleft lip and palate: 4
  • Cleft palate only: 10
  • Pierre Robin Sequence: 2

Treatment Funded by State for National Residents

  • Surgery costs: All
  • Speech and Language Therapy costs: All
  • Orthodontic costs: All

Record collection protocol


Are records routinely collected at specific ages? Yes

Does this conform to WHO recommendations for different cleft types? Yes

Research

Want to particpate in research? yes

Participation in inter-centre studies?

Current Research

Type(s) of software used: Excell and word
Participation in inter-centre studies: Yes
Details of studies: Genetic studies with Bruxelles (Pr Viikuula) on familaal cases and Van der Woud syndroms
Participation in other collaborations (projects): Yes
Details of projects: antenatal study with the department of mother and child in Caen
Published research papers: Yes
Details of publications: – Bénateau H, Roffé J-L, Cabouret D, Labbé D.
Prise en charge des fentes labio-maxillo-palatines au centre hospitalier universitaire de Caen.
Ann Chir Plast Esthet 2002; 47: 155-8. PMID : 12064205
– Bénateau H, Diner P-A, Soubeyrand E, Vazquez M-P, Picard A.
Les séquelles maxillaires dans les fentes labioalvéolopalatovélaires. Analyse des causes de la retromaxillie et réflexions sur sa prévention.
Rev Stomatol Chir Maxillofac 2007; 108, 4 : 297-300. PMID : 17689577- Picard A, Diner P-A, Labbé D, Nicolas J, Tomat C, Seigneuric J-B, Vazquez M-P, Bénateau H.
Les séquelles maxillaires dans les fentes labioalvéolopalatovélaires. Place de la distraction ostéogénique.
Rev Stomatol Chir Maxillofac 2007; 108, 4 : 313-20. PMID: 17675124- Bénateau H.
Les séquelles des fentes labioalvéolopalatovélaires indissociables du traitement primaire.
Rev Stomatol Chir Maxillofac 2007; 4 : 251. PMID: 17681573- Vanwijck R, Bayet B, Roffé J-L, Compère J-F, Bénateau H.
Les séquelles labiales dans les fentes uni- et bilatérales.
Rev Stomatol Chir Maxillofac 2007; 108, 4: 265-74. PMID: 17681568- Vazquez M-P, Soupre V, Bénateau H, Seigneuric J-B, Martinez H, Taieb M-F, Trichet-Zbinden C, Picard A.
Les séquelles velopharyngées dans les fentes labioalvéolopalatovélaires. Véloplasties et pharyngoplasties par lambeau pharyngé à pédicule supérieur ou inférieur.
Rev Stomatol Chir Maxillofac 2007; 108, 4: 334-42. PMID: 17681567- Traoré H, Benchemam Y, Letouzé Y, Bénateau H.
Experiences with unilateral cleft lip in a humanitarian mission in Mali.
S Afr J Child Health 2007; 1, 4: 156-9.
– Desmyter L, Ghassibe M, Revencu N, Boute O, Lees M, François G, Verellen-Dumoulin C, Sznajer Y, Moncla A, Bénateau H, et al.
IRF 6 Screening of syndromic and a priori non syndromic cleft lip and palate patients : identification of a new type of minor VWS sign.
Mol Syndromol 2010;1:67-74. PMID : 21045959
– Bénateau H, Traoré H, Gilliot B, Taupin A, Ory L, Guillou-Jamard MR, Labbé D, Compère JF.
Fermeture des fistules palatines séquellaires de fentes.
Rev Stomatol Chir Maxillofac 2011 ;112,3 :139-44. PMID: 21481901
– Desmyter L, Ghassibe M, Courtens W, Revencu N, Kivirikko S, Ameye G, Quentric M, Bayet B, François G, Vanwijck R, Bénateau H, Boute O, Pellerin P, Antoine-Poirel H, Vikkula M.
New cases of SOX9 regulatory region mutations in an Acampomelic campomelic dysplasia patient and a 3-generation Pierre Robin sequence family.
European J Human Genetics

Clinical research activities interested in being involved in:

Randomised clinical trials: Yes
Inter-centre comparison of outcome: Yes
Prospective study: Yes
DNA collection: Yes




Potential laboratory based research activities

Laboratory based research activities interested in being involved in:
Laboratory genetics/genomics research: Yes
Animal models research: Yes